Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with Alzheimer’s Disease and other neurocognitive disorders.
Personhood
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來自 Johns Hopkins University 的課程
Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies
43 個評分
Johns Hopkins University
43 個評分
從本節課中
Impact on the Person
In this module, we focus on the impact of dementia for individuals. You will learn about common unmet needs of persons with dementia as well as the impact of core clinical features such as behavioral and psychological symptoms. Also, you will learn ways to support quality of life of a person with dementia.
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Nancy Hodgson, PhD, RN, FAANAdjunct Instructor
Johns Hopkins University School of Nursing
Laura N. Gitlin, PhDProfessor
Johns Hopkins University School of Nursing
I'm going to be talking about the concept of personhood, and how that relates to
developing plans of care that promote well-being in individuals with dementia.
Dementia, as you know, is the ultimate thief.
It begins with deficits to short-term memory, eventually moving into
impairing an individual's ability to communicate their needs to us.
And then ultimately moving on and causing deficits in their ability
to function such that they're totally dependent on us for their care.
There are multiple losses that occur over this process, beginning with cognitive
losses and then moving into emotional, social, physical losses,
and the way that they are respected in the community because of these losses.
The individual's also impacted by other past traumas,
disadvantages that they've overcome, and the social dislocation that occurs
as part of the dementia care system, unfortunately.
Often individuals are asked to leave their home environment,
move into other supportive care environments, and
it's these ultimate insults over time that make dementia really an ultimate thief.
Personhood is an important concept to think about in relation
to these multiple loses.
And they should help us be mindful of the need to focus on the sense of
personhood of each individual.
However, the concept of personhood has been very widely debated,
primarily in the philosophical literatures and also in the literature
in thinking about laws around the rights and responsibilities of persons.
And so you look back historically over the literature,
you can see this long debate about the concept of personhood,
particularly among philosophers and ethicists.
As society began to cope with more and
more individuals with dementia residing in and
among in our society, a new level of debate actually occurred.
Some philosophers argued that personhood required the possession of certain
capabilities and capacities, such as the ability to think and reason logically.
Other ethicists and philosophers argue that personhood only requires simply being
a human being, that is the only requirement to this concept of personhood.
And it's that second definition, that simply being a human being is what
we'll focus on in our discussion today about the concept of personhood.
We owe this definition to the work of Tom Kitwood, who defined personhood
as the standing or status that's bestowed upon one human being,
by others, in the context of relationship and social being.
And that it implies recognition, respect, and trust.
Think about the way that individuals with dementia are cared for.
Are they fully recognized?
Are they respected?
Is their opinion trusted?
Especially as individuals lose the ability to communicate their needs with us,
often the utterances and the behaviors that they manifest are ignored and
not understood as an important way of their communicating their needs to us.
And so the personhood model's been particularly useful in helping
us understand why individuals express the symptoms that they're expressing.
And it's because that they have needs that are unmet, and
that we need to respect because we respect them as a person.
Here's the list of domains that Tom Kitwood identified.
The first is the need for comfort, for warmth and compassion,
in the care that we provide.
The second is occupation.
Not just paid employment, but
the need to be involved in meaningful engaging activities.
The third is the need of identity.
The need to feel that they have a sense of continuity with the past, and
that they have meaning, and that their life has meaning, and
that they are respected as individuals.
There's also the need for inclusion.
Feeling that they belong in a social group, and that they are socially accepted
or that their presence has meaning and they're attached to this social group.
And ultimately that there's a need for love,
to be unconditionally accepted regardless of who they are and their past.
Positive person work is the framework that Dr.
Kitwood developed to help us come up with tools and
pragmatic ways of applying the personhood framework into models of care.
And we're going to be talking about different examples of this
when we talk about models of care.
But if we think about the concept of unmet needs in comfort,
for example, we can use holding, relaxation,
timalation, and these domains to inform a palliative approach.
And we'll be talking about a palliative model of care next week
with the understanding that it's a comforting care, way of providing for
individuals, particularly those at end-stage disease.
We'll also talk about the application of meaningful activities
as a very important model of care, and we'll talk about that next week.
And here we'll talk about the need for meaningful engagement or the need for
occupation, and the ways that we go about that through things like play and
negotiation.
So all of these domains are useful in providing a framework,
a very practical way of using the concept of personhood in informing models of care.
And it'll really transcend all of the work that we're going to be talking about
next week.
So in conclusion, this is a very brief overview, and a brief introduction
to the idea of personhood as a central idea in person-centered care.
We use the term person-centered care rather lightly to infer an idea that
the patient is at the center of the care that we provide.
Here we're hoping that we're enhancing your understanding
of what we mean by person-centered care.
That it really is inherent in this idea of personhood.
Hope that this beginning discussion is useful to you.
We'll be providing you with other resources and
links if you're interested in learning more about this model.
There are rich resources available to you
online if you want to learn more about this concept of personhood.
Thank you.
